MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
How your information can lead to future treatments by Jacqueline Adam
MPS National Conference 2019 How your information can lead to future treatments by Jacqueline Adam Clinical and Communication Lead at MPS...
Moving to Semi or Full independence for ERT infusions by Catherine Stewart
MPS National Conference 2019 Moving to Semi or Full independence for ERT infusions by Catherine Stewart Clinical Nurse Specialist at...
MPS Cardiac Masterclass
MPS National Conference 2019 Investigation and Management by Chris Hendriksz on behalf of Dr Petra Jenkins
Mutations and predictions of disease severity by Derralynn Hughes
Focus on Fabry - Expert and Patient Meeting 2019 Mutations and predictions of disease severity by Derralynn Hughes Honorary Haematologist...
New therapies for Fabry disease by Derralynn Hughes
Focus on Fabry - Expert and Patient Meeting 2019 New therapies for Fabry disease by Derralynn A Hughes Lysosomal Storage Disorders Unit,...
Portacaths - To Port or Not to Port by Dr Fiona Stewart
MPS National Conference 2019 Portacaths - To Port or Not to Port by Dr Fiona Stewart Consultant in Medical Genetics, Clinical Genetics at...
Respiratory complications and interventions/ventilation/tracheostomy in adult MPS by Mr C. Gadepalli
MPS National Conference 2019 Respiratory complications and interventions/ ventilation / tracheostomy in adult MPS by Mr C. Gadepalli MD,...
Shifting the onset of disease into the adult world by Uma Ramaswami
MPS National Conference 2019 Shifting the onset of disease into the adult world by Uma Ramaswami Consultant in Metabolic Disorders at...
Small Molecules and Scissors - An overview of current treatments by Atul Mehta
MPS National Conference 2019 Small Molecules and Scissors - An overview of current treatments by Atul Mehta Consultant Haematologist at...
Smartphone app to monitor symptoms in Fabry patients by Uma Ramaswami
MPS National Conference 2019 Smartphone app to monitor symptoms in Fabry patientsby Uma Ramaswami LSDU, Information Governance, Royal...
Transferring from paediatrics to adult services nurses prospective by Jane Roberts and Stuart Hulme
MPS National Conference 2019 Transferring from paediatrics to adult services nurses prospective by Jane Roberts MPS II /VIand Stuart...
Transition - Clinician perspective by Uma Ramaswami
MPS National Conference 2019 Transition - Clinician perspective by Uma Ramaswami Consultant Paediatrician, Lysosomal Disease Department,...
Update on the Heart: Cardiac Involvement in Anderson-Fabry Diseas by Dr Ravi Vijapurapu
Focus on Fabry - Expert and Patient Meeting 2019 Update on the Heart: Cardiac Involvement in Anderson-Fabry Disease by Dr Ravi Vijapurapu...
Update on the Kidneys by Dr Shabbir Moochhala
Focus on Fabry - Expert and Patient Meeting 2019 Update on the Kidneys by Dr Shabbir Moochhala Consultant Nephrologist at Royal Free...
Update on treatment by Tarekegn Hiwot
Focus on Fabry - Expert and Patient Meeting 2019 Update on treatment by Tarekegn Hiwot Consultant in Inherited Metabolic Disorders,...
Variable Presentations in Female Fabry Patients by Atul Mehta
Focus on Fabry - Expert and Patient Meeting 2019 Variable Presentations in Female Fabry Patients by Atul Mehta Consultant Haematologist...
Inheritance
A guide to understanding the pattern of inheritance in MPS and related diseases including Fabry.
Carpel Tunnel, signs, symptoms and how to treat
MPS National Conference 2019 Carpel Tunnel, signs, symptoms and how to treat by Carla Baldrighi, Andrea Jester Hand and Upper Limb...
Gene therapy; where are we up to, what's currently happening
MPS National Conference 2019 Gene Therapy; where are we up to, what's currently happening by Julian Raiman Dr Julian Raiman at Birmingham...
How the world of digital may help us to better understand impact of disease for patients
MPS National Conference 2019 How the world of digital may help us to better understand impact of disease for patients by Christian...
How your information can lead to future treatments
MPS National Conference 2019 How your Information can lead to future treatments by Alex Morrison Clinical Data Lead at MPS Commerical
Importance of Sleep Studies
MPS National Conference 2019 The Importance of Sleep Studies by Dr James Davison Consultant in Paediatric Metabolic Medicine at Great...
Managing difficult behaviour
MPS National Conference 2019 Managing difficult behaviour by Daniella Vandepeer Mum to Caleb MPS II Hunter Syndrome
Radiological Abnormalities in the skull and spine for MPS I
MPS National Conference 2019 Radiological Abnormalities in the skull and spine for MPS I by Esmee Oussoren Metabolic Paediarician, Center...