MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
Let's talk about AM with schools: guide for parents and caregivers
Preparing for school meetings and ensuring support for children and young people with alpha-mannosidosis.
Alpha-mannosidosis diary
A resource for people living with alpha-mannosidosis and their caregivers to keep track of the medical and life journey.
Let's talk about AM for schools and education settings
A brief overview for schools, educational settings, and their teachers on how to support the learning and wellbeing of children or young people with AM.
Let's talk about AM for healthcare professionals
A quick reference guide for healthcare professionals who are not familiar with alpha-mannosidosis. You can share this leaflet with the healthcare professional involved in your care, and bring it to the appointment to help explain AM.
Understanding alpha-mannosidosis
A guide for parents and caregivers that aims to answer some of the questions you might have, and to provide information about the disease.
Let's talk about AM with your healthcare team
Prepare for appointments with healthcare professionals who may not regularly see patients with AM.
The importance of clinical guidelines
Sophie Thomas from the MPS Society and James Davison, consultant in paediatric metabolic medicine at Great Ormond Street Hospital in London, explain the development and purpose of clinical guidelines at MPS Matters 2025.
Be prepared: emergency information for admission to hospital
Emergency information for admission to hospital that you should have to hand.
Covid
Please find below some updated information from our adult clinical centres. The clinical centres are working tirelessly to manage the...
Portacaths - To Port or Not to Port by Dr Fiona Stewart
MPS National Conference 2019 Portacaths - To Port or Not to Port by Dr Fiona Stewart Consultant in Medical Genetics, Clinical Genetics at...