MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
Let's talk about AM with schools: guide for parents and caregivers
Preparing for school meetings and ensuring support for children and young people with alpha-mannosidosis.
Alpha-mannosidosis diary
A resource for people living with alpha-mannosidosis and their caregivers to keep track of the medical and life journey.
Let's talk about AM for schools and education settings
A brief overview for schools, educational settings, and their teachers on how to support the learning and wellbeing of children or young people with AM.
Let's talk about AM for healthcare professionals
A quick reference guide for healthcare professionals who are not familiar with alpha-mannosidosis. You can share this leaflet with the healthcare professional involved in your care, and bring it to the appointment to help explain AM.
Understanding alpha-mannosidosis
A guide for parents and caregivers that aims to answer some of the questions you might have, and to provide information about the disease.
Let's talk about AM with your healthcare team
Prepare for appointments with healthcare professionals who may not regularly see patients with AM.